Technical, legal and ethics aspects of genomic data sharing

Genomes | Privacy | Laws | Society - DSI Ethics Seminar

Michael Baudis

The presentation introduces the need for sharing and federated discovery of genome data in the contexts of personalized health and genomic researchand some of teh current developments in international standards and practices in the area. Here, special emphasis will be on the Global Alliance for Genomics and Health and its Beacon genomics data protocol.

Additionally, the presentation will provide talking points with respect to problems associated with theprotection of genomic privacy, with additional emphasis on the geneneral legal and societal contexts.


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